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Researchers are encouraged to discuss ideas for projects from an early stage, patient representative input can improve proposals before the grant application or ethics submission. The group assists in ensuring that patient and carer views and needs are considered.
Patient and public involvement can greatly increase the chances of getting a quality project through the funding, recruitment and dissemination process.
Discussion forum
Discussion forum
We are interested in all types of MS research!
ome and sound out new ideas or disseminate your findings with us - we are the people your research ultimately impacts upon.
Clinical protocol development
Clinical protocol development
Does your research involve patient volunteers?
Feedback from our group of MS patients can help to shape a protocol toward ethical approval, improve recruitment and retention onto a clinical study.
Improve study documents
Improve study documents
We sense check written communication.
We can review lay summaries and patient facing documents to check that they are clear and understandable to the target audience.
Prioritise important topics
Prioritise important topics
Is there an area of research you think is overlooked?
We can help identify and prioritise topics which are important to you, and those who will be taking part.
Spread the word
Spread the word
The best way to increase research awareness? Word of mouth!
Coming to us may help you find potential participants; some of our members are part of various research and support groups, and will happily disseminate information they think others will be interested in.
Enhance recruitment
Enhance recruitment
We re home to potential participants.
Our members can help provide useful advice on the pathways to take to recruit more patients.
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